====== About ARM ======
ARM (Advancement of Research for Myopathies) is a [[https://www.irs.gov/Charities-&-Non-Profits/Charitable-Organizations/Exemption-Requirements-Section-501(c)(3)-Organizations | 501(c)(3)]] non-profit organization with the primary goal of speeding up bio-medical research on IBM2, the Autosomal Recessive form of Hereditary Inclusion Body Myopathies (HIBM).

Founded by HIBM patients in 2000, ARM's mission is to support and inform patients and their families, to raise funds for research, to encourage researchers to study this rare disorder and to ultimately find a cure for Hereditary Inclusion Body Myopathy (HIBM). ARM, a non-profit organization, is the leading source of information, hope and knowledge for HIBM patients worldwide, and is the only non-profit organization specialized in this rare disorder. ARM offers scientific grants to research centers who are interested in working towards developing a treatment for HIBM.

Every year unsuspecting young adults are diagnosed with Hereditary Inclusion Body Myopathy (HIBM), a rare muscle wasting disorder for which there is no treatment or cure yet available.
For them and all HIBM patients, ARM offers a ray of hope with research funding, support and an expanding campaign of public awareness. Only with your help can ARM continue its efforts to cure this debilitating disease.

Read the story about two brothers, Dr. Daniel and Dr. Babak Darvish, whom in their 20's (1997) started experiencing HIBM symptoms during medical school. Living with such a powerful disease inspired them to come forward and dedicate their lives to research and finding a cure and thus formed ARM, a non-profit organization. 

[[http://www.americanchronicle.com/articles/156 | "Brothers in Search of a Cure"]]



Read the History of ARM and how it all began.\\
{{about_arm:arm_booklet2004.pdf|ARM History}}\\

====== Who We Are ======





===== 2016 Board of Directors =====
  * [[:community:bobby_darvish:bobby_darvish | Babak Darvish, MD]]
  * [[Nadia Adhami | Nadia Adhami]]
  * [[Hamid Soleimanian | Hamid Soleimanian, Esq]]
  * [[Minoo Koutal | Minoo Koutal]] 
  * [[Rodney Yashouafar | Rodney Yashouafar, JD]]
  
\\ \\


===== Scientific Advisory Committee =====
  * [[bill_and_marjan | William A. Gahl, MD, PhD]] \\ National Institutes of Health \\ Intramural Office of Rare Diseases \\ Clinical Director, National Human Genome Research Institute \\ Bethesda, Maryland 

  * [[jacques_tremblay | Jacques P. Tremblay, PhD]] \\ Unité de Génétique Humaine, \\ CRCHUQ Research Center \\ And Department of Anatomy/Physiology \\ Laval University, Quebec, Canada

  * [[john_nemunaitis | John J. Nemunaitis, MD]] \\ Executive Director, \\ Mary Crowley Medical Research Center \\ Dallas, Texas

  * [[jon_wolff | Jon Wolff, MD, PhD]] \\ Waisman Center \\ University of Wisconsin, Madison \\ Founder/CSO Mirus biopharma  \\ Madison, Wisconsin

  * [[bill_and_marjan | Marjan Huizing, PhD]] \\ National Human Genome Research Institute \\ NHGRI, NIH \\ Medical Genetics Branch \\ Bethesda, Maryland

  * [[marlene_haffner | Marlene E. Haffner, MD, MPH]] \\ Executive Director, Regulatory Affairs, Amgen, Inc. \\ Thousand Oaks, California and Washington, DC

  * [[assad_kazeminy | Assad J. Kazeminy, PhD]] \\ Founder/CEO Irvine Pharmaceuticals \\ Irvine, California

  * [[michael_eshaghian | Michael Eshaghian, MD]] \\ Obstetrics & Gynecology, Family Planning, Pre-Natal Diagnostic \\ Los Angeles, California