https://www.hibm.org/hrg/hrgwww/ 2026-04-08T08:05:54+00:00 https://www.hibm.org/hrg/hrgwww/ https://www.hibm.org/hrg/hrgwww/_media/wiki:dokuwiki.svg text/html 2021-08-20T03:10:18+00:00 daniel (daniel@undisclosed.example.com) https://www.hibm.org/hrg/hrgwww/aboutus:aboutus?rev=1629429018&do=diff About HRG HIBM Research Group (HRG) is a 501(c)(3) non-profit public benefit corporation, engaged in collaborative biomedical research towards accelerating the development of therapy for HIBM * Mission, Vision, and Values * Leadership & Management * Posters & Publications * History of HRG We refers patients for clinical testing to laboratories accredited by the College of American Pathologists (CAP), and licensed by the Department of Health Services Clinical Laboratory Improvement… text/html 2021-08-20T02:40:26+00:00 daniel (daniel@undisclosed.example.com) https://www.hibm.org/hrg/hrgwww/aboutus:posters_and_publications?rev=1629427226&do=diff Posters & Publications Below is a list our publications and poster presentations through fruitful collaboration. Publications Publications in collaboration with other investigators. * Murray A. The Release of a Soluble Glycosylated Protein from Glycogen by Recombinant Lysosomal α-Glucosidase (rhGAA) In Vitro and Its Presence in Serum In Vivo. Biomolecules 2020 Nov 29;10(12):1613. doi: 10.3390/biom10121613. PMID: 33260301 text/html 2021-08-19T21:09:47+00:00 daniel (daniel@undisclosed.example.com) https://www.hibm.org/hrg/hrgwww/aboutus:leadership_and_management?rev=1629407387&do=diff Leadership & Management Daniel Darvish, MD: Dr. Darvish is the founder of HIBM Research Group, and he is an experienced molecular genetics, laboratory quality management, and information technology executive. He completed medical school training at University of George Washington, Washington, D.C, 1993, and specialty training in Internal Medicine at Olive-View/UCLA program in southern California, 1996. Subsequently, Dr. Darvish dedicated his career to the rapid advance of research towards t… text/html 2021-08-19T20:59:35+00:00 daniel (daniel@undisclosed.example.com) https://www.hibm.org/hrg/hrgwww/aboutus:mission_and_vision?rev=1629406775&do=diff Mission, Vision, and Values Mission: HRG was organized to speed up development of effective treatments for Autosomal Recessive Hereditary Inclusion Body Myopathy or GNE Myopathy. Our mission includes accomplishing this goal in the most efficient manner possible, with special emphasis on considerations of results/duration/cost value of biomedical research activities. text/html 2021-08-19T20:57:23+00:00 daniel (daniel@undisclosed.example.com) https://www.hibm.org/hrg/hrgwww/contactus:start?rev=1629406643&do=diff Contact Us HIBM Research Group, Inc. We look forward to hearing from you. text/html 2021-08-19T20:54:22+00:00 daniel (daniel@undisclosed.example.com) https://www.hibm.org/hrg/hrgwww/forattorneys:start?rev=1629406462&do=diff text/html 2021-08-19T20:52:23+00:00 daniel (daniel@undisclosed.example.com) https://www.hibm.org/hrg/hrgwww/fordoctors:what_is_hibm?rev=1629406343&do=diff What is HIBM or GNE Myopathy? Hereditary Inclusion Body Myopathies (HIBM) are a group of muscle wasting disorders, which are uncommon in the general world population. An autosomal recessive form of HIBM is known as GNE Myopathy, IBM2, which is a common genetic disorder amongst people of Iranian-Jewish descent. IBM2 has also been identified in other minorities throughout the world. Patients of Asian (Japanese and others), European, and South American origin, as well as Muslim patients in the Mid… text/html 2021-08-19T20:50:00+00:00 daniel (daniel@undisclosed.example.com) https://www.hibm.org/hrg/hrgwww/fordoctors:start?rev=1629406200&do=diff Information For Doctors HRG is a unique laboratory involved in both clinical testing and collaborative biomedical research towards developing an effective therapy for HIBM. Since HIBM is an ultra-orphan disorder, we strongly encourage collaborative research and philanthropic efforts through text/html 2021-08-19T20:47:57+00:00 daniel (daniel@undisclosed.example.com) https://www.hibm.org/hrg/hrgwww/forpatients:start?rev=1629406077&do=diff Information For Patients Please consult with your physician or genetic counselor if you are considering testing for any serious or debilitating hereditary disorders. The outcome of the test may irreversibly alter your future. 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