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About ARM

ARM (Advancement of Research for Myopathies) is a 501(c)(3) non-profit organization with the primary goal of speeding up bio-medical research on IBM2, the Autosomal Recessive form of Hereditary Inclusion Body Myopathies (HIBM).

Founded by HIBM patients in 2000, ARM's mission is to support and inform patients and their families, to raise funds for research, to encourage researchers to study this rare disorder and to ultimately find a cure for Hereditary Inclusion Body Myopathy (HIBM). ARM, a non-profit organization, is the leading source of information, hope and knowledge for HIBM patients worldwide, and is the only non-profit organization specialized in this rare disorder. ARM offers scientific grants to research centers who are interested in working towards developing a treatment for HIBM.

Every year unsuspecting young adults are diagnosed with Hereditary Inclusion Body Myopathy (HIBM), a rare muscle wasting disorder for which there is no treatment or cure yet available. For them and all HIBM patients, ARM offers a ray of hope with research funding, support and an expanding campaign of public awareness. Only with your help can ARM continue its efforts to cure this debilitating disease.

Read the story about two brothers, Dr. Daniel and Dr. Babak Darvish, whom in their 20's (1997) started experiencing HIBM symptoms during medical school. Living with such a powerful disease inspired them to come forward and dedicate their lives to research and finding a cure and thus formed ARM, a non-profit organization.

"Brothers in Search of a Cure"

Read the History of ARM and how it all began.
ARM History

Who We Are

2016 Board of Directors

Scientific Advisory Committee

  • William A. Gahl, MD, PhD
    National Institutes of Health
    Intramural Office of Rare Diseases
    Clinical Director, National Human Genome Research Institute
    Bethesda, Maryland
  • Jacques P. Tremblay, PhD
    Unité de Génétique Humaine,
    CRCHUQ Research Center
    And Department of Anatomy/Physiology
    Laval University, Quebec, Canada
  • Jon Wolff, MD, PhD
    Waisman Center
    University of Wisconsin, Madison
    Founder/CSO Mirus biopharma
    Madison, Wisconsin
  • Marjan Huizing, PhD
    National Human Genome Research Institute
    Medical Genetics Branch
    Bethesda, Maryland
  • Michael Eshaghian, MD
    Obstetrics & Gynecology, Family Planning, Pre-Natal Diagnostic
    Los Angeles, California